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THE SICKLE CELL PASSPORT The exact number of individuals in Canada affected by Sickle Cell Disease is not known, but in Toronto about 450-500 children are seen in the Hospital for Sick Children's Sickle Cell Clinic. This is a comprehensive clinic where continuous surveillance is given. During a recent Advanced Clinical Practice Fellowship in the hematology/oncology program at the Hospital for Sick Children, the Sickle Cell Passport was developed. The Registered Nurses Association of Ontario (RNAO) through funding from the Ministry of Health and Long Term Care (MOHLTC) sponsored the Advance Clinical Practice Fellowship headed by Ms. Dotty Nicholas, who is also an active member of SCAO education committee. The Sickle Cell Passport is a mini health record of Sickle cell history that can be used for clinic and hospital visits. It provides easy to access information for health care providers in a time when the patient may not be able to recall the necessary information needed. It also allows families to tract their sickle cell experience including crises episodes, and treatments that were helpful. What is the Passport? · A mini health record of Sickle Cell history for patients or families to carry with them at all times · The record is used to track episodes of crisis and has the most recent laboratory results and treatment · Provide physicians in emergencies with information about latest treatments, lab results, and previous dosages of narcotics that were helpful How will it Benefit Families? · Provide important information regarding previous hospital treatments immediately · Provide mechanisms for tracking crisis episodes requiring hospital treatment and those that did not · Discharge summary of follow up plans · Include phone numbers for physicians from out of town to access child’s health record at Centenary Health Centre or Hospital for Sick Children · Families as active partners in child’s care · Promote continuity of care · Especially helpful if traveling out of town |